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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.
Your VCFS Information Source

Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
P.O. Box 874
Milltown, NJ  08850

Toll Free: 1-866-VCFSEF5
              (1-866-823-7335)

Within U.S. & Canada:
    (214) 360-4740
Outside U.S. & Canada
    (732) 238-8803

Email: info@vcfsef.org


Kelvin P. Ringold
Webmaster
kelvin@vcfsef.org

 




16th Annual International Scientific Meeting of the VCFS Educational Foundation, Inc.
hosted by AIdel22, Rome, Italy
For details -- http://www.aidel22.it/index.asp

Welcome to the Official Web Site of the Velo-Cardio-Facial Syndrome (VCFS) Educational Foundation, Inc.  The Foundation is an international not-for-profit organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners.  The Foundation is independent of -- and not affiliated with -- any particular institution.

The Foundation is organized divisionally into a number of continental groups, with directors for each part of the world represented on the Foundation's board.  These divisions are:

VCFS -- also known as 22q11.2 deletion syndrome, Shprintzen Syndrome, DiGeorge Sequence and, regrettably, Catch 22 -- is caused by the deletion of a small segment of the long arm of chromosome 22 (specified as 22q11.2 deletion), and is one of the most common genetic disorders in humans. Velo-Cardio-Facial syndrome is characterized by cleft palate, heart abnormalities, learning disabilities, and over 180 other clinical findings. Please see the VCFS Fact Sheet for details.

The VCFS Educational Foundation, Inc. is committed to educating the lay and professional public by:

  • offering family programs
  • facilitating parent-to-parent networking
  • distributing educational materials concerning Velo-Cardio-Facial syndrome
  • publishing a periodic information newsletter
  • hosting an annual conference for laymen and professionals

Much of our material is in PDF format, which requires the free  Adobe Acrobat Reader.


Worthy of Note

April 2008 Newsletter
(English)

2008 Conference
Audio Tapes / CDs

VCFS Webcast DVDs

Current Research Studies
(Updated: 11/04/2008)

Events of Interest


2008 Dues - Pay Now

DONATE HERE !


"Knowledge is Hope" Brochures
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